Work Programs at a Glance
Learn more about our current work programs, activities and deliverables.
Maternal Program - Digital Pregnancy Health Record (DPHR)
The Digital Pregnancy Health Record (DPHR) team in Children’s Health Queensland, Queensland Health has been working hard to deliver the DPHR proof of concept. The exciting news is that the trial version is working, data from the pregnant woman’s antenatal check-up with the GP is flowing to the Child Data Hub and appears on the expectant mother’s app on her phone. Test data (rather than ‘live’ data) has been used at this stage, but several different clinical scenarios have been tested and are working as expected.
Children’s Program - Child’s Digital Health Record (CDHR) 0-4 years
The Child Digital Health Record 0-4 (CDHR 0-4) initiative being run out of NSW has reached a significant milestone by being able to enrol GPs at Dubbo (in western NSW) and Seven Hills (in western Sydney) to conduct health checks on children aged 0 – 4 years. Mothers with babies and infants of that age are trialling the consumer app when they are about to have their child health check assessments done. We will be surveying both GPs and mothers to gather feedback on the ease and use of the software and the app.
Child Digital Health Record (CDHR) 5-14 years
Extensive consumer and clinical surveys are out in the field, with people completing questionnaires as well as qualitative interviews. Led by the Northern Territory and Western Australia, the outcome of these surveys will determine what clinical information needs to be collected to maximise health outcomes in these formative years.
Privacy & Cyber Security - How we protect the privacy of data
We understand how important it is to ensure the privacy and security of children’s and mothers’ health information.
Despite the CDHR trial involving only a small group of users (both individuals and clinicians), we have put several measures in place that protect the privacy of the information in the system.
The trial is being run and managed by eHealth NSW, the digital health agency of NSW Health. All data captured during the trial will be stored and managed under the same strict security and privacy requirements that NSW Health applies to all of its systems.
Next Steps on the Program
Each element of the program has made significant progress in proving the technology solutions and creating valuable underlining infrastructure and data standardisation that will enable the viability of longitudinal health records for children and young people.
We now need to take the key learnings from each of the trials and develop an efficient solution that can easily scale up. The trials have started, and we want to ensure the technology can support large numbers of people using it, while still working on the data standardisation for the cohort of older children. We will continue to evaluate the clinical and consumer utility of these solutions during the trials to assess what will be required as we scale to a national solution.
During the next 12 months, the program will be working with the Australian Digital Health Agency to understand the next steps for the technology and solution. The primary focus will be to assist with the transition to make this happen. We have also been asked to continue with the informatics, terminology and creation of the FHIR resources and profiles to assist with the national scaling, and to continue our partnership with the consumers and providers who are taking part in the current CDHR trials. We will keep you up to date with our progress.
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