Health information that is available whenever and wherever it is needed
WHAT WILL BE DELIVERED BY 2022
- Every Australian will have a My Health Record, unless they choose not to have one, by the end of 2018.
- All healthcare providers will be able to contribute to and use health information in the My Health Record on behalf of their patients, providing potentially lifesaving access to reports on their medications, allergies, laboratory tests and chronic conditions, and supporting significant improvements in the safety, quality and efficiency of healthcare for the benefit of individuals, the healthcare system and the economy.
- All Australians will be able to access their information at any time online and through mobile apps
My Health Record is an electronic summary of an individual’s key health information, drawn from their existing records and designed to be integrated into the systems of the healthcare practitioners who are treating them. In May 2017, the Australian Government announced that the My Health Record would transition to an opt-out participation model. The decision means that by the end of 2018, every Australian will have a My Health Record unless they choose not to.
The National Digital Health Strategy details evidence of the economic and health benefits that will be accelerated under the new participation model.
To achieve the outcomes of this priority area, and to ensure the My Health Record becomes an unprecedented platform for innovation, a high degree of coordination and integration will need to be achieved across the digital health eco-system, ensuring:
- Consumers can opt out efficiently or have a record created;
- Consumers can participate with a high quality of service;
- Healthcare providers have the required My Health Record functionality and are adequately educated and trained to meet consumer expectations; and
- National infrastructure is robust, stable and scalable
The benefits for Australians and the Australian healthcare system are:
- National opt-out will provide a transformative opportunity to support healthcare integration and deliver significant improvements in both the quality and efficiency of healthcare.
- Lives and money will be saved, with safer medicines management, better coordinated care and informed treatment decisions.
- There will be a more efficient health system (e.g. less time searching for patient data, reduced avoidable hospitalisations and tests).
- Patients will be put at the centre of their healthcare, so they can take greater responsibility for their own health.
- Data analytics will enable innovation and health service planning that will lead to more sustainable resourcing and new evidence-based clinical approaches.
Roles of participants in order to achieve benefits
|Healthcare consumers||Drive provider adoption by discussing the My Health Record with their healthcare providers. Be empowered and active in their own health and care by engaging with and contributing to their My Health Record.|
|Healthcare providers||View and contribute to the My Health Record on behalf of their patients. Ensure they have the technical functionality and adequate training required to meet consumer expectations of use. Operate and invest in the technical infrastructure required to interact with the My Health Record system.|
|Industry & technology sector||Deliver connectivity to the My Health Record, and operate and enhance the technical infrastructure required to support its use. Ensure healthcare providers have the required My Health Record technical functionality to enable adoption and usage. Design innovative products and digital solutions which are intuitive and easy to use, ensuring consumers and clinicians are able to access their benefits.|
|Peak organisations||Participate in provider readiness activities to develop clinical policies and guidelines, education and training and communications collateral for members aimed at driving adoption of the My Health Record to benefit healthcare consumers|
|Australian Digital Health Agency||Lead the My Health Record Expansion Program, including developing communications material and facilitating provider readiness activities. Operate and continue to enhance core services to support the My Health Record system, and ensure it supports the delivery of safe, efficient, and better quality healthcare as new technologies emerge. Responsible for the security and privacy of the My Health Record system, ensuring the system complies with the Australian Government requirements for storing and processing protected information.|
|Commonwealth Government||Provide the funding and regulatory framework for operation and evolution of the My Health Record system. Primary Health Networks to engage with healthcare consumers, healthcare providers, industry and tech sector, and peak organisations to increase awareness of the My Health Record. Engage, co-design, deliver and support National Opt Out solutions for hard to service groups, and lead the work to implement a secondary use framework for My Health Record system data.|
|State and territory governments||View and contribute to the My Health Record on behalf of their patients. Provide awareness materials to support frontline staff in the public healthcare system. Operate the technical infrastructure required to interact with the My Health Record system|
Priority actions for co-development 2018 - 2022
1.1 Realising the benefits of the My Health Record system
Accelerate the realisation of benefits of the My Health Record system through the delivery of an opt-out participation model that is actively supported and adopted by the community and those that care for them
1.1.1. My Health Record Expansion Program
Deliver Opt-out participation arrangements nationally for the My Health Record system
By December 2018, the Australian Government will provide a My Health Record for every Australian unless they choose to not have one. The My Health Record Expansion Program will accelerate the realisation of benefits of the My Health Record system through the delivery of a national opt-out model that is actively supported and adopted by the community and those that care for them. The program will include the Agency coordinating a national communications strategy to inform individuals and healthcare providers of the automatic creation of the My Health Record, partnering with delivery partners such as Primary Health Networks (PHNs) and consumer peak organisations that will distribute communication materials and resources to the communities they represent.
1.1.2. Future use of the My Health Record
Making the My Health Record an unprecedented platform for innovation
The My Health Record provides a data platform that will foster and support digital innovation, assisting consumers to self manage their own health and well being, as well as leading to the development of digital health solutions that support clinicians to care for patients and improve patient safety. The My Health Record will be continuously improved, with scoping, building, testing and executing system releases planned over the life of the strategy to provide additional functionality and health information that benefits clinicians and consumers. Key actions to support innovation include:
- Co-production with the broader sector of a My Health Record vision and blueprint;
- Increasing the capture of available and relevant information in the system, including pathology and diagnostic imaging results, medicines profile, and medical device information, as well as improving the consistency and usability of medical reports;
- Improving the usability of Clinical Information Systems to ensure the My Health Record integrates more intuitively, based on the development of an evidence based design research framework.
These actions will be key enablers for new digital apps and tools that support Australians to improve their health, as well as support advances in precision medicine, supported by developments in genomics and other technologies that allow diseases to be treated, predicted or prevented more effectively.
1.1.3. Medical devices in the My Health Record
Use the My Health Record to improve medical device information for patients and healthcare practitioners
To improve the nature of information for patients with regard to medical devices, from 1 December 2018 the Therapeutic Goods Administration is requiring that manufacturers of new permanently implantable devices will need to provide an implant card and an information leaflet to patients. However, there are concerns that these cards could be misplaced or damaged over time. To address this issue, there is an option for the My Health Record to be used to store medical device information digitally to ensure this important information is not lost. Storing a minimum set of information (brand, model, serial number) will also support the function to be able to identify patients with a particular device in the event that a recall is needed.
1.2 Enable the safe and secure use of My Health Record system data
Enable use of My Health Record system data to improve population health outcomes, health service planning, and research
1.2.1. Secure use of My Health Record data
Implement a framework to enable the safe and secure use of My Health Record system data
The use of My Health Record system data for research, policy and planning purposes can improve the Australian health system by making it more efficient, effective and sustainable. A framework to guide the secondary use of My Health Record system data has been developed that reflects Australians’ expectations about how the system information should, or could, be used. An implementation working group will be established to oversee the development of an implementation plan. Data will not immediately flow from My Health Record; the Australian Institute of Health and Welfare will consult with stakeholders on planned ethics and approvals processes to ensure protection of individuals’ privacy. The release of data is expected to commence from 2020, subject to the finalisation of an implementation plan and establishment of the framework’s governance arrangements.